‘Power to the People’ Gets Real in Research

In a recent blog at the NY Times, Steve Lohr observes that “Traditionally, patient information has been tapped for research in large pooled databases” but that is changing due to “Institutional practice, individual attitudes and new technology…” leading to new opportunities in research. He quotes Dr. Stephen Friend of Sage Bionetworks: “The patient, doctor and researcher – each is a different kind of expert.” Mr. Lohr and Dr. Friend are right on target. We are seeing exactly these trends play out in real-time in www.iConquerMS.org – an initiative funded by the Patient-Centered Outcomes Research Institute  – designed not...

A New Journey To The Center

Most people remember Jules Verne’s best-selling science fiction novel, and the films it inspired, about a journey to the center of the earth filled with “natural hazards.” As a society, we have embarked on an equally thrilling and far more science-based journey in which we seek to place the patient at the center of healthcare and our health care system. Personalized medicine can be seen as the perfect ‘vehicle’ to that patient-focused core of care, fueled by the specificity of molecular diagnostics and targeted therapeutics. So, on the 10th anniversary of the Personalized Medicine Conference, and the 13th...