Networks, Cities, and Data: The Future of Better H...

If you’re not convinced the future of healthcare has arrived, just wait a few days:  it should be coming to a mobile device or a big box store near you soon: Quantified-self software by which you can monitor every bodily function and have the data integrated into your medical record. Low-cost Genomic profiling to identify your disease risks. Biomarker-directed personalized drugs that are optimally efficacious for your particular molecular sub-group of disease. Self-help health maintenance tools to integrate all that bodily function monitoring and your genomics profile with the right drugs and food/exercise choices to slow or prevent...

The (New) Ethics of Medical Privacy

I recently had the opportunity to attend a screening of Here.Us.Now., a documentary funded by the Ewing Marion Kauffman Foundation. It should be required viewing for anyone who touches the health care system, which includes pretty much everyone. The film tells the story of Chris and Hugh Hempel’s medical odyssey in the wake of their twin daughters’ diagnosis with a rare, incurable disease called Niemann-Pick Type C. I can’t get this film out of my head.   Why? Because it not only tells the Hempels’ story rationally and beautifully, it uses their narrative to absolutely nail the bigger issues facing any family desperately...