Cancer and “Cost”:  The Real Story May11

Cancer and “Cost”: The Real Story

CancerCare, a national non-profit organization that provides free psychosocial support, education and financial assistance to anyone affected by cancer, has released its landmark 2016 Patient Access and Engagement Report. The report is based on surveys that ‘touched’ more than 3,000 patients with wide diversity of ethnicity, income, education, geography, age, insurance, cancer type and treatment stage—in other words, you could find someone like yourself amongst them…or a family member….or a neighbor. People just like us. There are some encouraging findings in the report that perhaps reflect the ongoing cultural shift towards more...

Powering Our Progress Against Cancer Feb02

Powering Our Progress Against Cancer

The following opinion article was published online first in The Hill’s Congress Blog. Marcia A. Kean is a co-convener of the Turning the Tide Against Cancer initiative, along with Edward Abrahams, President of the Personalized Medicine Coalition and Margaret Foti, PhD, MD (hc), CEO of the American Association for Cancer Research. For more information on the Turning the Tide Against Cancer initiative, visit http://turningthetideagainstcancer.org/ “Let’s make America the country that cures cancer once and for all.”  This statement resonated through the Capitol building during President Obama’s final State of the Union address....

We All Have a Role to Play in Turning the Tide Aga...

In recent years, the pace of scientific discovery and medical progress has transformed our approach to the prevention, early detection, and treatment of cancer. Today, new targeted therapies are being used to pinpoint specific cell mutations and pathways leading to cancer’s progression and to stop tumor growth with fewer side effects. And, innovative approaches to harness our body’s own defenses have led to the development of new cancer vaccines and immunotherapies that attack the disease. With nearly 14.5 million cancer survivors in the United States, there is no doubt that we have made great strides in our fight against...

Patient-Centered Cancer Research and Care

Leading up to the American Society for Clinical Oncology’s annual meeting this week, the Pharmaceutical Research and Manufacturers of America (PhRMA) [client] posed the following question as part of its “Conversations” series – “How do we promote patient-centered cancer research and care in an era of increasing pressure to control healthcare costs?” PhRMA’s “Conversations” platform fosters open and ongoing dialogue on health care policy solutions. The forum blends posts from formal contributors with comments from experts and thought leaders on a broad range of high-level policy topics to help gauge what’s working,...

Accessible Healthcare Conference Hashtags

As we counsel our clients on developing and executing digital strategies leading up to and during industry conferences – specifically around Twitter – one of the consistent obstacles is understanding and being able to adapt to attendees’ wide variety of experience, comfort levels and understanding of the using Twitter during a live vent. Recently, we saw a great example of how the American Society of Clinical Oncology leveraged an infographic to clearly share information before their annual meeting on the appropriate hashtags to use, subject matter experts in attendance and their Twitter handles. This served as a...

Get your hands off my genes!

Recently the U.S. Supreme Court ruled that human genes cannot be patented and that any existing patents on one or more of our naturally occurring 22,000 genes will now be invalid. The case centered around Myriad Genetics patent claim on two genes associated with a higher risk of breast and ovarian cancer, BRCA1 and BRCA2. Myriad had patented both the diagnostic test for these genes and the genes themselves and held the market monopoly, charging on average $3,500 per test, a price that Angelina Jolie recently described in her New York Times article as “an obstacle for many women.” To use the genes/jeans analogy, original store-bought...