Cancer and “Cost”:  The Real Story May11

Cancer and “Cost”: The Real Story

CancerCare, a national non-profit organization that provides free psychosocial support, education and financial assistance to anyone affected by cancer, has released its landmark 2016 Patient Access and Engagement Report. The report is based on surveys that ‘touched’ more than 3,000 patients with wide diversity of ethnicity, income, education, geography, age, insurance, cancer type and treatment stage—in other words, you could find someone like yourself amongst them…or a family member….or a neighbor. People just like us. There are some encouraging findings in the report that perhaps reflect the ongoing cultural shift towards more...

Powering Our Progress Against Cancer Feb02

Powering Our Progress Against Cancer

The following opinion article was published online first in The Hill’s Congress Blog. Marcia A. Kean is a co-convener of the Turning the Tide Against Cancer initiative, along with Edward Abrahams, President of the Personalized Medicine Coalition and Margaret Foti, PhD, MD (hc), CEO of the American Association for Cancer Research. For more information on the Turning the Tide Against Cancer initiative, visit http://turningthetideagainstcancer.org/ “Let’s make America the country that cures cancer once and for all.”  This statement resonated through the Capitol building during President Obama’s final State of the Union address....

‘Power to the People’ Gets Real in Research

In a recent blog at the NY Times, Steve Lohr observes that “Traditionally, patient information has been tapped for research in large pooled databases” but that is changing due to “Institutional practice, individual attitudes and new technology…” leading to new opportunities in research. He quotes Dr. Stephen Friend of Sage Bionetworks: “The patient, doctor and researcher – each is a different kind of expert.” Mr. Lohr and Dr. Friend are right on target. We are seeing exactly these trends play out in real-time in www.iConquerMS.org – an initiative funded by the Patient-Centered Outcomes Research Institute  – designed not...

A New Journey To The Center

Most people remember Jules Verne’s best-selling science fiction novel, and the films it inspired, about a journey to the center of the earth filled with “natural hazards.” As a society, we have embarked on an equally thrilling and far more science-based journey in which we seek to place the patient at the center of healthcare and our health care system. Personalized medicine can be seen as the perfect ‘vehicle’ to that patient-focused core of care, fueled by the specificity of molecular diagnostics and targeted therapeutics. So, on the 10th anniversary of the Personalized Medicine Conference, and the 13th...

Networks, Cities, and Data: The Future of Better H...

If you’re not convinced the future of healthcare has arrived, just wait a few days:  it should be coming to a mobile device or a big box store near you soon: Quantified-self software by which you can monitor every bodily function and have the data integrated into your medical record. Low-cost Genomic profiling to identify your disease risks. Biomarker-directed personalized drugs that are optimally efficacious for your particular molecular sub-group of disease. Self-help health maintenance tools to integrate all that bodily function monitoring and your genomics profile with the right drugs and food/exercise choices to slow or prevent...