Hot Topics In Rare Disease

Tomorrow is Rare Disease Day, an international health observance with the objective of raising  awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. As many research, provider and advocacy organizations with strong connections to the rare disease community are launching initiatives this week to support that objective, the weekly #abcDRBchat series on Twitter took up the topic during this week’s discussion.

Below we have collected some of the top discussion themes that arose out of the 2,700 tweets that were published during Tuesday’s chat.