Visualizing Rare Diseases

In the rare disease world, it’s sometimes hard to grasp the statistics and emotions that go hand in hand with having a condition that doesn’t get as much funding, research attention, or media attention as more common health conditions and disease. In honor of today being Rare Disease Day, we’ve collected some infographics that effectively communicate  the reality of orphan diseases and the people that struggle against them.     Read about FKH’s commitment to rare...

Hot Topics In Rare Disease

Tomorrow is Rare Disease Day, an international health observance with the objective of raising  awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. As many research, provider and advocacy organizations with strong connections to the rare disease community are launching initiatives this week to support that objective, the weekly #abcDRBchat series on Twitter took up the topic during this week’s discussion. Below we have collected some of the top discussion themes that arose out of the 2,700 tweets that were published during Tuesday’s chat. [View the story...