Using new technologies to debunk HIV myths and enc...

Of the nearly 1.2 million people living with HIV in the U.S., almost one in five are unaware of their HIV positive status. Additionally, half of new infections are transmitted by people who don’t know they have the virus. At a time when unmet need is high, and more has to be accomplished with fewer resources, HIV advocates are finding innovative ways to raise awareness, mobilize communities and encourage HIV testing. For instance, HIV/AIDS service organizations are harnessing the power of new media to reduce fear and clear up misperceptions that can be roadblocks to testing, including: Testing is not needed because I’m not at risk....

A Bluebird on My Shoulder…

The recent bluebird bio IPO has further buoyed expectations for gene therapy, early stage biotech and rare diseases. Is the euphoria justified? Perhaps for investors. But bluebird still has a ways to go before it has an approved therapy, as do other recent biotech IPO winners. So, what can we infer from the market’s Zip-A-Dee-Doo-Dah mindset – particularly in the face of so many concerns elsewhere? A couple of things, I think: They see rare diseases as a category likely to avoid being squeezed by downward pricing pressures from the Affordable Care Act and the broader burden of health costs in our economy. Thus, the potential payoff...

Things I’ll Remember to Do For Next Year’s Health ...

Health Datapalooza IV, which took place in Washington D.C. earlier this month, was spearheaded by the Health Data Consortium to bring together innovators, entrepreneurs, academics, government agencies and other movers and shakers to share the latest and most innovative examples of health data being used to improve health. A number of FKH colleagues attended and helped staff this event. I made it my mission to attend as many sessions as possible and live-tweet the talks. I can’t begin to measure everything that I learned from the keynotes, breakouts and live demos, but based on my experience at this year’s event, here are just a few of...